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On Friday 21 October 2011, the European Myeloma Platform (EMP) and Myeloma Euronet (ME) merged to become Myeloma Patients Europe.
Both organisations strongly believe that joining forces will provide a robust network and offer huge benefits to myeloma patients and their families across Europe. Their work will be more effective, efficient and sustainable and their capacity to play a role among other stakeholders in the European myeloma, cancer and health scenes will increase considerably. Consequently they have taken the decision to merge and to create an entirely new European umbrella organisation of Myeloma Patients Groups.
Their website is under construction www.myelomapatientseurope.org.
For the foreseeable future, the existing websites of EMP and ME will remain operational.
To contact MPE, please email info@myelomapatientseurope.org or contact Philip Bloom philip.bloom@myeloma-euronet.org or Lia Van Ginneken l.vanginneken@emp-myeloma.eu
Download the entire press release
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European patient organisations EUROPEAN MYELOMA PLATFORM and MYELOMA
EURONET have today officially announced at the European Hematology Association Meeting
in London that they have taken the decision to merge. Joining forces will provide a stronger
network and offer huge benefits to myeloma patients and their families across Europe.
Download the entire press release
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Greetje Goosens has been invited to follow a course on Health Technology Assessment (HTA) at the London School of Economics and Political Science (LSE), September 14-17 .
HTA plays an important part in the developments of health policies in Europe. Patients have a role to play in these discussions, but they need to be well prepared on the topic.
EMP is very glad that Greetje is willing and able to take this course in order to be able to represent the European Myeloma patients.
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During the year 2010 – first part of 2011, Greetje Goossens represented the European Myeloma Platform (EMP) as one of the Patient Observers in the Pharmacovigilance Working Party (PhVWP) of EMA. (2 Patient Observers make part of this working party).
On the request of EMA, how her personal experiences have been, she gives a description hereunder.
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Representing the European Myeloma Patients (CMP and EMP), Greetje Goossens has attended the "Thalidomide - Follow-up meeting with patients" and victims'organisation on September 5, 2011 at the European Medicine Agency
See for more information www.ema.europa.eu
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