European Symposium Myeloma - Waldenström
The European Myeloma Platform (EMP) and the MM&WM Patient Association (CKP), the Netherlands, are very pleased to invite you for this symposium which is organized in honour of the celebration of the 25th anniversary of the CKP.
Thursday, October 30th 2008,
Government Building of the Province of Limburg, Maastricht, the Netherlands.
Aim of the Symposium.
The aim of the Symposium is to demonstrate the infl uence of patient organisations on the formulation of health policies at national and European levels, using the 25 years of experience of the CKP. Recommendations for the future role of patient organisations will be formulated.
The programme of the Symposium.
The programme will focus on: The current role of patient organisations; the participation of patient organisations in the development of new treatments and medications; the participation of patient organisations in making medications and treatments available; their participation in the provision of adequate information for patients; the need for European patient networks. Panel discussions are planned between the sessions.
The Symposium is intended for representatives of the following national and European target groups: Patients; patient organisations; patient-support institutions; physicians; nurses, health policy makers and related professionals; politicians such as EU members of parliament and representatives of industry/pharmaceutical companies.
The outcome of the Symposium will be worked out during a round table conference the day following the Symposium. The results of the Symposium will be summarized. Conclusions will be drawn for short- and long-term aims for European and national patient organisations. A work plan will be developped. Participants of this round table conference will be representatives of all stakeholders. Participation will be on invitation only.
The official language of the Symposium will be English. Translation will be available into German, French and Dutch.
Registration is free of charge.
A number of scholarships to attend this Symposium will be available.
For more information see the Symposium brochure under ‘General Information’ and the enclosed registration and scholarship forms.
We hope that you will join us in Maastricht!
Invitation (PDF)
Registration Form (PDF)
Symposium Presentations
Presentations:
Experiences of a patient organisation at the national level, Dr. P. Wijerman
Current role of the patient organisation, Experience on European level, Peter Randlov
The Role of Patient Organisations in Making Medications and Treatments Available: EMEA Experience, Dr. N. Wathion
Information needed, Dr. Rolf Pelzing
Different ways to produce information for patients, Mrs. C. Honing
The need for European patients network, Bode
Democracy of patient advocacy, P.C. Huijgens
Participation of patient organizations/patients in the development of new treatments and medication, S. Knop
Patient participation in clinical trials, D. Schryver
Photos:
Symposium Maastricht 30th of October 2008
Round Table 31st of October 2008
The outcome of the Symposium, the final report, can be downloaded here.