MULTIPLE MYELOMA - SOCIAL AND EMOTIONAL ASPECTS
Living with a serious disease is a challenge. Patients may need to make lifestyle changes, which can be distressing. MM also places a strain on family members and friends. Talking to the physician, nurses and support group members may help ease concerns about the disease and the future. Many patients feel emotional relief once they can reestablish a sense of control in their lives
The diagnosis of MM may provoke a profound emotional response in patients, family members and friends. Denial, depression, a feeling of hopelessness and fear are normal and usual reactions.
No one’s response is either expected or unexpected.
“Why me?” is a common question patients ask. It is a normal reaction to a diagnosis of cancer and the need for treatments. Many emotions surface at the time of diagnosis and during treatment. The need for drug and other therapies, and the realization that illness and treatment will cause some changes in one’s life, can prompt a range of feelings.
People newly diagnosed with cancer face uncertainty about what comes next. Together, you, your family and your physician, can address your concerns in a clear and straightforward manner. For many people, the beginning of treatment and chance for remission bring emotional relief as the focus shifts to the treatment process ahead and the prospect of recovery.
Treatment Choices.
The process of making choices about chemotherapy and other treatment options can cause a great deal of anxiety. The patient’s physician, nurses, support group workers understand the complexity of emotions and special needs of those undergoing chemotherapy. Spending time with the patient, answer questions, lend emotional support, and provide referrals to other useful resources.
Family and Friends.
The support of family and friends can contribute to a patient’s ability to cope with what lies ahead. It is recommended that a friend or family member accompany a patient to treatments and consultations, especially for the first several times. The presence of a friend or family member may help ease anxiety. In addition, this person can act an advocate, asking questions for the patient and listening to and retaining treatment information. Often, patients with MM become acquainted with one other while attending a support group meeting, and these friendships, too, can provide a support system.
Lifestyle Changes.
Changes in lifestyle will occur for a patient with cancer and his or her family. Daily routines may have to be adjusted to accommodate treatment schedules. However, many patients are able to carry out their day-to-day routines with few or no changes.
Stress and side effects associated with the diagnosis of MM and its treatment often will cause a person to question his or her self-worth, identity and appearance. These feelings are common and may affect one’s relationships, including sexual relationships.
Open, honest communications regarding fears and concerns within Patient Support Groups can be very helpful and most rewarding.
Ilse Hein